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In early May 2009, our 7-month old daughter, Olivia Susan Ferrandi, was diagnosed with an extremely rare and fatal neurological disease known as Canavan Disease.
Most children with Canavan's cannot crawl, walk, sit or talk. Over time they may suffer seizures, become paralyzed, mentally retarded or blind and have trouble swallowing. Although hearing usually remains a functioning sense, deafness may also result.
Currently, there is no cure for the disease but there is hope...
Although this is such a rare disease (less than 300 reported cases in the U.S.), we have learned through research that there are treatments available to potentially help improve the quality of life and prolong Olivia's lifespan. There is a team of doctors in New Jersey, New York and Pennsylvania that specialize in treating the disease. However, the cost for these treatments does add up and are not always covered by insurance.
We are asking for your help with any donation for Olivia through Paypal or via mail.
Please click on the “donate” tab for more information.
Our family has hope that we can and will find a cure for this disease and provide Olivia with the beautiful life she deserves.
Sincerely and Gratefully,
Jamie, Sacha and Olivia Ferrandi
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